The advice centre is our online resource for free information and advice on epilepsy and our other services. Our blog posts cover a wide range of topics and provide valuable knowledge that our clients and others may find useful.
Photosensitive epilepsy is the term commonly used for people who have seizures triggered by flashing or flickering lights and patterns. Due largely to its depiction in TV and film, it’s also a type of epilepsy trigger that many people think is an extremely common trigger. Although it affects around 20,000 people in the UK alone,…Read more
The National Institute for Health and Care Excellence (NICE) has published their initial decision to not recommend the use of cannabidiol/CBD (Epidyolex) for people who have Lennox-Gastaut or Dravet syndrome. This is an initial decision and not yet classed as final NICE guidance, which means that although they are not initially backing it as a…Read more
Juvenile absence epilepsy (JAE) is an epilepsy syndrome that’s quite common. It’s slightly more prevalent in girls than boys and presents mostly with absence seizures, which can mean that it’s easily confused for childhood absence epilepsy (CAE) and juvenile myoclonic epilepsy (JME). Symptoms With JAE, seizures will most often start between 9 - 12 years…Read more
It’s more common than you would expect for people with epilepsy to wonder whether it’s safe to cycle or not. This is partly due to the growing popularity of cycling as a form of exercise and enjoyment, but also because many people with epilepsy are unable to drive until they’ve been seizure-free for over a…Read more
Within reason, there are very few jobs that should be off-limits to people with epilepsy. An employer can not legally use your epilepsy as a reason to not give you a job. It is also important that employers are willing to make reasonable adjustments to accommodate you should they be needed. There are however a…Read more
Category: Living with Epilepsy
In July 2019, young actor, Cameron Boyce tragically died in his sleep as a result of SUDEP (Sudden Unexplained Death in Epilepsy). Cameron was known for his roles in a number of Hollywood films and TV shows, including Grown Ups, Descendants and Jessie. Of course, within the epilepsy community SUDEP is not new. However, the…Read more