Blog

Epilepsy is not just a medical condition; it affects many aspects of life, including emotional and psychological well-being. Both individuals living with epilepsy and their caregivers face unique challenges that can benefit from professional support.  Therapy and counselling play a crucial role in managing these challenges, offering a safe space to explore emotions, develop coping…

Category: Advice

Caregiving is a dynamic role that demands adaptability, knowledge, and ongoing learning. For those caring for individuals with epilepsy, staying informed about the latest advancements in treatment, understanding emerging research, and refining caregiving skills are essential components of effective care.  Continuous education not only enhances your ability to provide the best support but also helps…

Category: Advice

A 13-year-old boy from the UK, Oran Knowlson, became the first person globally to undergo a trial for a groundbreaking epilepsy treatment. The treatment involved implanting a neurostimulator directly into his skull, which has successfully reduced his daytime seizures by 80%.  Oran, who has Lennox-Gastaut syndrome, a severe and resistant form of epilepsy, underwent surgery…

Category: News

Caring for someone with epilepsy is a rewarding yet challenging responsibility. While ensuring the safety and well-being of your loved one is crucial, it's equally important to prioritise your own health.  Caregiver stress and burnout are common among those who dedicate their time and energy to supporting individuals with epilepsy. But how can you manage…

Category: Advice, Education

Living with epilepsy presents unique challenges, not just in managing the epilepsy but also in navigating the healthcare system. Self-advocacy is crucial to ensure you receive the best possible care and support. Here are some practical tips to help you effectively advocate for yourself: 1. Educate Yourself About Epilepsy Knowledge is power. Understanding your epilepsy…

Category: Advice

In the event of a seizure, effective communication with emergency services is crucial for ensuring prompt and appropriate care. Here’s a guide on how to prepare for and handle these situations. 1. Prepare Your Information in Advance Before an emergency occurs, gather and organise all essential information that emergency responders might need. This includes: Full…

Category: Advice