Childhood Epilepsy with Centro-Temporal Spikes (CECTS)

12th July 2021

Childhood Epilepsy with Centro-Temporal Spikes (CECTS) is one of the most commonly diagnosed epilepsy syndromes in children. In fact, as many as 1 in 5 children with epilepsy are diagnosed with CECTS.  This particular syndrome affects males slightly more frequently than females and symptoms can start typically anywhere between the ages of 3 and 10…

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Category: Syndromes

Epilepsy of Infancy with Migrating Focal Seizures

5th July 2021

Epilepsy of Infancy with Migrating Focal Seizures is one of the more recently discovered epilepsy syndromes having first been described in 1995. The reason for it’s late discovery is that it’s extremely rare and affects somewhere between 1 in 200,000 to 1 in 400,000 people.  The syndrome is believed to be due to abnormal genes,…

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Category: Syndromes

Personal Independence Payment (PIP) for People with Epilepsy

28th June 2021

Accurate as of time of writing: 28th June 2021 Personal Independence Payment (PIP) is a benefit that some people with epilepsy may be entitled to claim. PIP is a benefit that’s designed to help with any additional costs associated with long term illness or disability.  What are the criteria for receiving PIP payments with epilepsy? …

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Category: Advice

Mother Hails Ketogenic Diet as A Lifesaver After Baby Diagnosed With Epilepsy

7th June 2021

When first-time parents, Angelique and Darryl’s newborn daughter, Bella, began to have periods where she would “become absent” at just 3 and a half months old, they were of course concerned.  Her Mother, Angelique commented that “Bella was fine one minute then staring into space the next. It was like she was absent for a…

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Category: News, Treatments

New Research Sheds Light on the Link Between Sleep and Sudden Unexpected Death in Epilepsy (SUDEP)

31st May 2021

Researchers from the University of Virginia School of Medicine have discovered a new potential link between sleep and SUDEP. It’s long been known that people with epilepsy are at a higher risk of SUDEP, but very little is known about why this is the case.  The research was conducted by monitoring the sleep of 41…

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Category: News

Juvenile Myoclonic Epilepsy (JME)

24th May 2021

Juvenile Myoclonic Epilepsy (JME) is a relatively common syndrome that can occur between the ages of 6 and 26, although the majority of cases fall within the smaller timescale of 12 to 16 years. JME presents more commonly in females than males and has also been known as Janz Syndrome.  Symptoms  JME often presents with…

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Category: Syndromes