Self-limited Neonatal Convulsions

8th February 2021

A relatively uncommon syndrome, self-limited neonatal convulsions occurs in babies and young infants and initially presents with seizures which start in the first 28 days of life (the neonatal period). This syndrome was once informally known as ‘5th day fits’ as it often starts on the 5th day of life, although in reality can be…

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Category: Syndromes

Bedrocan Supply Threat – An Open Letter from National Epilepsy Training

1st February 2021

We recently wrote a post on how the threat of a halt of prescriptions for cannabis-based medication, Bedrocan, is going to affect 42 families within the UK.  One of the 42 children affected is one of our own clients here at National Epilepsy Training.  Our client is only 12 years old, and can have up…

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Category: News

Parents Fear as Brexit Cuts Off Supply of ‘Life Saving’ Cannabis-based Medication

31st January 2021

Supplies of medical cannabis have been halted due to Brexit, which has left around 40 parents fearing for their child’s safety as they were reliant on the medication.  One case is that of Alfie Dingley, a 9 year old boy, who used to experience up to 150 seizures a day, which led to his mother…

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Category: News

Online trolls send boy with epilepsy, aged 8 hundreds of flashing images

30th July 2020

In a truly disgusting story that highlights the terrors of online trolls, hundreds of people sent malicious flashing GIF images in response to a fundraiser led by a young boy with epilepsy and his mother.  The Epilepsy Society, who were involved with the fundraiser and retweeted the requests for help on social network Twitter commented…

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Category: News

Three new therapeutics for epilepsy have been uncovered

23rd July 2020

A major international study has discovered three molecules, all of which have the potential to be developed into new medications with promising applications for epilepsy. The aim of the study was to discover new, more effective medications for those people who have seizures that cannot currently be controlled by the treatment options available at the…

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Category: News

Can listening to Mozart daily reduce the number of seizures in people with epilepsy?

16th July 2020

Around 65 million people worldwide live with epilepsy and reducing the number of seizures they experience is always a key concern. This is often done through a number of treatment options, such as anti-epileptic medications (AEDs), surgery, specialised diets and a number of other options. However, is it possible that music could also help to…

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Category: News, Treatments