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Epilepsy is one of the most common neurological conditions in the UK, affecting around 600,000 people. A significant proportion of those individuals are of working age. Yet many organisations still lack a clear, written policy to guide how they support employees with epilepsy — or how they respond when a seizure occurs at work. A…

Category: Advice

One of the more challenging situations for anyone supporting a person with epilepsy is when that individual declines the help on offer. They may refuse to follow their support plan. They may decline rescue medication. They may choose not to inform their employer, their school, or their family. They may insist on activities that carry…

Category: Uncategorised

For some women with epilepsy, seizures follow a predictable pattern linked to their menstrual cycle. This phenomenon, known as catamenial epilepsy, affects between 10% and 70% of women with epilepsy at some point in their lives. Understanding the relationship between hormones and seizures can help women recognise patterns, track changes effectively, and have informed discussions…

Category: Advice, Seizures, Syndromes

Deciding whether, when, and how to tell your employer about epilepsy is one of the most common concerns for adults managing epilepsy in the workplace. This guide provides practical information about your legal position, timing considerations, and approaches to these conversations. Do You Legally Have to Tell? The short answer is: it depends on the…

Category: Advice

For women with epilepsy, choosing contraception requires careful consideration. Some anti-seizure medications (ASMs) can reduce the effectiveness of hormonal contraception, and some contraceptives may interact with epilepsy treatment. Understanding these interactions is essential to prevent unplanned pregnancy and make informed choices. The Problem: Why Some Anti-Seizure Medications Affect Contraception Certain anti-seizure medications (ASMs) are enzyme-inducing…

Category: Uncategorised

When a child experiences their first seizure, it can be an intensely frightening experience for everyone involved. Understanding what to do in the moment, what happens next, and how to navigate the medical pathway ahead can help you respond calmly and effectively. This guide provides structured information to support you through the immediate response, initial…

Category: Advice