Handing your child to a babysitter, friend or relative is part of everyday family life. When a child has epilepsy, that handover can feel loaded with worry. The solution is preparation. Give the people you trust clear information, the right skills and the confidence to act. This guide shows you how to brief carers and how training turns anxiety into a calm, reliable routine.
Seizures can happen without warning. Most are not life threatening, but the first minutes matter. A confident carer can prevent injuries, reduce panic and collect useful details for clinicians. Without guidance even caring adults may make avoidable mistakes, such as restraining a child, inserting objects into the mouth or moving them too soon after a fall.
Create a one page pack and keep it with the emergency kit.
Call 999 if a seizure lasts longer than five minutes, if seizures repeat without recovery, if breathing does not return to normal, if there is a serious injury or if this is a first ever seizure. If unsure, call. Paramedics prefer to be called early.
If your child has Buccal Midazolam or Rectal Diazepam prescribed, babysitters should only administer after hands on training and clear written consent. Keep medication in a labelled kit with the prescription, dose chart and the action plan. Check expiry dates each month and replace in good time.
Confidence grows with practice. Do a dry run together before a first sit.
Be explicit about expectations. Agree when the sitter should contact you during the evening, what activities are okay, which screens to avoid if photosensitivity is a concern and what bedtime looks like. Clear boundaries remove guesswork and reduce stress for everyone.
If your child attends after school clubs or sports, align the sitter pack with the documents used by staff. Consistency helps everyone act the same way. Share the same action plan with coaches and club leaders, and confirm who can administer rescue medicine on site.
Ask your clinician for an individualised protocol that lists the exact circumstances for rescue medication, the dose, repeat dose rules and when to call for help. Keep a signed consent form in the kit. Update documents after clinic reviews, medication changes or weight based dose adjustments.
You do not have to teach everything yourself. National Epilepsy Training can deliver:
Courses can be delivered in person or online to suit your schedule and can include babysitters, relatives and school staff so everyone hears the same clear guidance.
Teaching friends and babysitters epilepsy first aid is not about turning them into clinicians. It is about giving them simple, reliable actions and the confidence to use them. With a clear plan, a practised routine and appropriate training, parents can step out without dread and children can enjoy the ordinary freedoms every family deserves.