Caring for someone with epilepsy can be deeply rewarding, but it can also be demanding. Over time, the emotional, physical and mental strain can add up, leading to what’s often called carer burnout. This happens when the responsibilities of caring become overwhelming, and it’s more common than many people realise.
Recognising the early signs of burnout is essential, both for your own wellbeing and for the person you support. Below are ten key indicators to watch out for. If any of these feel familiar, it may be time to seek help, take a step back, or explore additional support.
Feeling tired is normal after a long day, but burnout-related fatigue is different. It’s a deep exhaustion that doesn’t improve with rest. If you find yourself struggling to get through the day, nodding off at odd times, or feeling permanently drained, it may be a warning sign.
Carers often find their sleep disrupted by worry, night-time monitoring, or simply not being able to switch off. Ongoing difficulties falling asleep, staying asleep, or waking up feeling unrested may indicate that stress levels are becoming too high.
Small frustrations might suddenly feel overwhelming. You may notice yourself snapping at loved ones, feeling more impatient than usual, or experiencing sudden mood swings. These emotional changes are a common sign of burnout.
When you’re caring for someone, it’s easy to put your own interests to one side. But if you find yourself avoiding social activities, losing touch with friends, or giving up hobbies that once brought you joy, this could be a red flag that burnout is setting in.
Many carers experience guilt – for wanting time off, for not doing enough, or even for having negative thoughts about their role. Persistent guilt can weigh heavily on mental health and may prevent you from seeking the help you need.
Stress doesn’t just affect your mood – it impacts your body too. Frequent headaches, muscle aches, stomach problems, or a weakened immune system can all be linked to burnout. Ignoring your own health may make you less able to provide care in the long run.
Burnout can affect your ability to think clearly, make decisions, or remember things. You may feel forgetful, distracted, or unable to focus on simple tasks. This mental fatigue can be especially concerning when you’re responsible for supporting someone else.
If you often feel like there’s no way out, or that things will never get better, this may be a sign of emotional exhaustion. These feelings of hopelessness are a clear indicator that you need extra support.
One of the hardest things to admit as a carer is when your patience runs out. You may feel frustrated, resentful, or short-tempered with the very person you want to help. Recognising this as burnout, rather than personal failure, is important.
Perhaps the biggest warning sign of all is when you stop looking after yourself. Skipping meals, missing medical appointments, not exercising, or ignoring your own mental health needs are all strong indicators of carer burnout.
Caring for someone with epilepsy is a role that requires patience, compassion and strength. But no one can pour from an empty cup. Recognising the signs of burnout is not a weakness – it’s a first step towards protecting both your health and your ability to provide care.
If you relate to any of the signs above, please don’t ignore them. Reach out for support and remember that you don’t have to manage everything on your own. And, as always, for medical concerns – whether for yourself or the person you care for – speak to a healthcare professional for guidance.