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Ohtahara syndrome, also known as early infantile epilepsy encephalopathy with suppression bursts, is an extremely rare syndrome that starts in very young babies, usually below the age of 3 months.  In the vast majority of cases, the baby will have a structural brain abnormality to which this syndrome can be attributed. These abnormalities can be…

Category: Syndromes

Genetics factors affect everybody, these are attributes that are inherited, passed down from one generation to the next. As science and medicine advances, we constantly understand better the role that genetics can play in epilepsy.  It’s important to note that although some types of epilepsy are inherited and known to run in the family, some…

Category: Education

A heartwarming story hit the news recently after a viral social media post highlighted that there are 1200 cases of SUDEP in the UK alone (sudden unexplained death in epilepsy) per year, which is 3 people every single day.  The Twitter thread, which can be seen here, was posted by Hari Miller after she inherited…

Category: News

We recently wrote about the EU approval of Epidiolex, but things seem to be moving quickly and since then two medications have been approved for use by the NHS in England. This follows guidance from the National Institute of Clinical Excellence (NICE) which looked at the product thoroughly and assessed its suitability based on several…

Category: News

Groundbreaking research has found that the brains of children with severe epilepsy can remap themselves to regain functionality following surgery. This has been seen in a number of cases where the brain has changed to compensate for missing regions that have been surgically removed, particularly in the visual cortex.  A joint study between York University…

Category: News

Myoclonic astatic epilepsy is an extremely uncommon epilepsy syndrome that affects only 2 out of every 100 children with epilepsy. It more commonly affects males and symptoms can become clear between the ages of 18 months and 5 years. This syndrome has no known cause, but is widely believed to be as a result of…

Category: Syndromes