Blog

Accurate as of time of writing: 28th June 2021 Personal Independence Payment (PIP) is a benefit that some people with epilepsy may be entitled to claim. PIP is a benefit that’s designed to help with any additional costs associated with long term illness or disability.  What are the criteria for receiving PIP payments with epilepsy? …

Category: Advice

When first-time parents, Angelique and Darryl’s newborn daughter, Bella, began to have periods where she would “become absent” at just 3 and a half months old, they were of course concerned.  Her Mother, Angelique commented that “Bella was fine one minute then staring into space the next. It was like she was absent for a…

Category: News, Treatments

Researchers from the University of Virginia School of Medicine have discovered a new potential link between sleep and SUDEP. It’s long been known that people with epilepsy are at a higher risk of SUDEP, but very little is known about why this is the case.  The research was conducted by monitoring the sleep of 41…

Category: News

Juvenile Myoclonic Epilepsy (JME) is a relatively common syndrome that can occur between the ages of 6 and 26, although the majority of cases fall within the smaller timescale of 12 to 16 years. JME presents more commonly in females than males and has also been known as Janz Syndrome.  Symptoms  JME often presents with…

Category: Syndromes

Limbic Encephalitis (LE) is a very rare disease that’s often a cause of seizures and epilepsy. Most commonly affecting adults, but LE can affect approximately 1 in 150,000 to 300,000 children in the UK each year. It’s an auto-immune condition whereby the body's own antibodies begin to attack parts of the body, in the case…

Category: Syndromes

Unfortunately, there are still many cases where epilepsy is undiagnosed. Most recently, earlier this month there was a high profile case where 29-year-old actor, Amii Lowndes, who has appeared in Doctor Who and Skins, died from undiagnosed epilepsy. Amii’s death was caused by sudden unexpected death in epilepsy (SUDEP).  Back in 2019, actor Cameron Boyce…

Category: Living with Epilepsy