When to Call 999: Clear Criteria for Emergency Response

12th May 2026

In an emergency, hesitation costs time. When someone has a seizure, the people around them often face a moment of uncertainty. Should they call 999? Should they wait? Is this serious enough? That uncertainty is understandable, but it is also avoidable. Clear criteria exist for when emergency services should be contacted during or after a…

Read more

Category: Advice

Epilepsy and Perimenopause: Understanding the Impact

30th April 2026

For many women, perimenopause brings a range of physical and emotional changes that can feel difficult to predict or explain. For women with epilepsy, this life stage can introduce an additional layer of complexity — one that is not always well understood, even by those closest to them. This article explores the relationship between perimenopause…

Read more

Category: Advice, Living with Epilepsy

Epilepsy and Lone Working: Guidance for Employers and Employees

23rd April 2026

The number of people working alone — whether from home, on the road, or in isolated settings — has increased significantly in recent years. For most employees, lone working is simply a feature of modern working life. For individuals with epilepsy, it raises specific questions that employers and employees need to consider carefully. This article…

Read more

Category: Advice, Living with Epilepsy

Epilepsy in the Workplace: What a Good Organisational Policy Looks Like

16th April 2026

Epilepsy is one of the most common neurological conditions in the UK, affecting around 600,000 people. A significant proportion of those individuals are of working age. Yet many organisations still lack a clear, written policy to guide how they support employees with epilepsy — or how they respond when a seizure occurs at work. A…

Read more

Category: Advice

When Someone Doesn’t Want Help: Capacity, Consent, and Epilepsy

9th April 2026

One of the more challenging situations for anyone supporting a person with epilepsy is when that individual declines the help on offer. They may refuse to follow their support plan. They may decline rescue medication. They may choose not to inform their employer, their school, or their family. They may insist on activities that carry…

Read more

Category: Uncategorised

Catamenial Epilepsy: When Your Menstrual Cycle Affects Your Seizures

17th March 2026

For some women with epilepsy, seizures follow a predictable pattern linked to their menstrual cycle. This phenomenon, known as catamenial epilepsy, affects between 10% and 70% of women with epilepsy at some point in their lives. Understanding the relationship between hormones and seizures can help women recognise patterns, track changes effectively, and have informed discussions…

Read more

Category: Advice, Seizures, Syndromes