Blog

Gene therapy inspires both hope and caution. For families living with severe or treatment resistant epilepsy, the idea of addressing seizures at their genetic root is compelling. This article explains what gene therapy means in epilepsy, who might benefit, where the research has reached and why everyday training still matters. What gene therapy means Gene…

Category: News, Technology, Treatments

Becoming a father is a life-changing experience—one that brings joy, responsibility, and a fair share of challenges. For men living with epilepsy, these challenges can feel more complex. From managing health risks to navigating emotions, work-life balance, and parenting expectations, fatherhood and epilepsy can intersect in unique and deeply personal ways. Whether you're already a…

Category: Advice, Education, News, Seizures

Artificial intelligence (AI) has the potential to transform healthcare in remarkable ways, and epilepsy is no exception. From improving diagnosis to predicting seizures and personalising treatment plans, AI could revolutionise epilepsy care. This blog explores how AI might shape the future of epilepsy management and what it could mean for those living with the condition.…

Category: News

A 13-year-old boy from the UK, Oran Knowlson, became the first person globally to undergo a trial for a groundbreaking epilepsy treatment. The treatment involved implanting a neurostimulator directly into his skull, which has successfully reduced his daytime seizures by 80%.  Oran, who has Lennox-Gastaut syndrome, a severe and resistant form of epilepsy, underwent surgery…

Category: News

Valproate prescriptions for men with epilepsy are now subject to precautionary measures across the European Union (EU), as announced by the European Medicines Agency (EMA). These measures align with the guidelines set by the UK's Medicines and Healthcare products Regulatory Agency (MHRA) but are comparatively less stringent. In the UK, individuals under the age of…

Category: News

Living with epilepsy involves navigating a complex landscape of treatments and strategies to enhance overall well-being. In recent years, innovative approaches have emerged to complement traditional therapies. One such promising frontier is Virtual Reality (VR) therapy, offering new possibilities for managing epilepsy and improving the quality of life for individuals dealing with this neurological condition.…

Category: Living with Epilepsy, News