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ESESS is a particularly rare epilepsy syndrome that develops in mid-childhood, around 4-5 years and normally affects children who already have epilepsy. It accounts for just 0.2% - 0.5% of childhood epilepsy syndromes and it’s slightly more common in males than females (62%). The cause of this syndrome is still currently unknown. What are the…

Category: Syndromes

On November 1st 2018, cannabis-based medicines became legal in what was a momentous turning point for many families who had fought for legality. A young boy named Billy Caldwell and his family made national news as a result of their plight and campaign to have cannabis-based medicines made available after it had shown effectiveness in…

Category: Treatments

Feeling anxious is an emotion that many people will be familiar with, it’s most commonly felt when we find ourselves in a challenging or threatening situation. An evolutionary trait that kicks in our fight or flight reflex and survival instincts. It’s completely normal to feel anxious in these situations, however, should it develop into something…

Category: Living with Epilepsy

The deadline for Brexit is getting ever closer as the UK is set to leave the EU on 29th March 2019. However, many things are still up in the air and the manner of the departure is still unclear. One option is a “no deal Brexit”, which many experts feel will have a big impact…

Category: Treatments

This particular syndrome will usually begin very early in the newborn period, normally before 2 to 3 months of age. The underlying cause of early myoclonic encephalopathy is often a metabolic disorder known as nonketotic hyperglycinemia, however, it can also be caused by brain malformations and neurogenetic disorders.   Symptoms Seizures can vary with this…

Category: Syndromes

More often than not, a person’s seizure will last for a similar amount of time and stop by itself. However, sometimes a seizure will last longer than 5 minutes or another seizure will occur straight after leaving the person with no time to recover. If this lasts for 30 minutes or more, a diagnosis of…

Category: Treatments